Fibromyalgia...anyone else??

SatansLittleHelper

SatansLittleHelper

Well-Known Member
Joined
27 December 2011
Messages
5,788
Location
Shropshire
Visit site
I was diagnosed with Fibro a while ago due to being in constant pain. Just wondered if there is anyone else here who has it and how you cope with riding/chores etc???
Adding this to depression is really...well..depressing to be honest.
And of course nothing has gone to plan with my youngster who, due to a muscle rupture, is off games till at least Xmas. Everything is SO frustrating..grrrrr
Ummm ok whinge over :o
 
Hi SLH, I have Fibromyalgia too. I have had it for many years and its goes alongside my Crohns Disease and Rheumatoid Arthritis. In all seriousness, you have to learn to just get on with things. If I sat around doing nothing every time I was in pain, I would never leave my house.

I know it's hard sometimes (really hard at times) but painkillers and a strong mental attitude are key. My ponies keep me going and without them I wouldn't be as strong I don't think.

Just remember to be kind to yourself when you can, rest as much as possible and look after yourself.
 
Find a limit, reduce it and then try and stick to it. Pacing is key and it's taken me years to get it right and I still get it wrong today some 7 years on!! If you want the odd day (and I mean the odd day, not 3 times a week) when you want to say stuff it then ibuprofen, lucozade, chocolate and a big kick up the bum to push through it. Don't forget to jump straight into a hot bath at the earliest convenience to help those muscles and ALWAYS remember that you will pay for it so if you want to or find yourself having to have a manic full on day don't forget to give yourself time to recover, the payback may come the next day or not for a few days so always remember that it's a give and take thing.
 
I Have Fibro Too.....

Had a Doc that was Adamant That I was Making it up, Changed Doc and She Did MORE for Me in Two Sessions than Old Doc did for Me in Nearly Two Years and Because Of Old Doc I'm Now in a Wheelchair!
 
Me too. I manage it with a combination of very strict bedtimes (late nights and mornings make me feel awful), regular exercise and metatone. Someone on here recommended metatone (it's just an on the shelf vitamin tonic you can get from boots, Tescos etc) and I honestly cannot believe the difference it has made for me.
 
I have it along with ME & MS. Pacing, physio and a variety of drugs help me live a relatively normal life, yes there are times when I need help but a positive attitude usually gets me through most things :)
 
I have ME and depression, so some similarities. I've had to accept that riding/horses will only ever be a share thing because my health simply isn't reliable enough to take on sole care, none of my family is horsey enough to cover for me, and finances will never stretch to full livery.

I plan my chores carefully to use as little energy as possible - even tiny things like taking the shavings fork back at the same time as taking the barrow to the midden saves me a walk across the yard and takes a smidge less energy. Tack cleaning is done at home, where I can sit comfortably, rather than having to stand in the cold tackroom. If I'm feeling tired, I take a little break there and then - even if it means pausing mid-muck-out - rather than pushing on and making the crash worse.

In non-horsey-self-care, I find I always go into a slump at this time of year, so dig out my lightbox and give myself a blast of bright light most evenings. I also have a painkiller schedule that I stick to diligently, otherwise I'll find myself getting down/grumpy because I'm in pain without being consciously aware of it. (I'm sure you know that thing where you're so used to the pain being constant that you only realise how bad it was when it's gone.)
 
You must log in or register to reply here.
Top