There was a baby a couple of years ago called Charlotte I think who was in the same position - the doctors wanted to leave her if she deteriorated but the parents won the case to make sure she was recusitated and she is now smiling and has a decent quality of life. It is really hard to know whats right.
Bearing in mind that I have not yet had my baby, and I do still have a certain view on things like this........I feel that 100% the right decision has been made.
I do not feel that it is right to alter what would be natures course. It will not have been an easy decision to make, as yes miraculous recoveries can be made, but if the child or person in question is in a permanent vegetative state, then that is no quality of life. We would not keep an animal like that, so why a human. And yes I pray that never happens to anyone I love, but if it does, so be it. They cannot be certain the child was not in pain.
If that is the one I am thinking about then she still needs round-the-clock care after two years in hospital, the parents have split up and neither wants to care for her. It may well be a different one though.
Hard as it is, I do think the decision in this case is right.
Unfortunatley for this baby with the condition he has there is no effective treatment and certainly no miracle cure. The harsh reality is that modern technology has kept him alive this far - without it he would sadly have died shortly after birth and there is no prospect of him being able to function without he help of life support/advanced technology. If they ruled to keep him alive this child would never be able to come off the machines and certainly never leave hospital. The reality is that at some point he would suffer from an infection/blood clot that would cause him to die and possibly suffer - what sort of quality of life has this baby ever had? His condition is a genetic one and exisits in the tiny mitochondria that live within evryone of our cells. Mitochondria are a relatively new find in science terms (only about 30 or 40 years) and drug treatments/technology just can't move that fast.
Our expectation is that we can cure and treat everything now - the reality is somewhat different sadly.