Daisy2
Well-Known Member
Hi There
Recent threads lead me to post my experience with MS and that it does not always have to be so. It took my neuro 3 yrs to diagnose me and my symptons were bad, I had scans the lot. It became so bad that they offered me a drug only for the few about 30000 worldwide and people have died using it, so I said no. I researched other deseases with similar symptoms, cut along story short I was tested positive for Hughes Syndrome which the neuro's dont talk too much about, I was put on low dose aspirin by my spec at St Thomas hosp in London and have not had any symptoms since 2yrs. The docs are a little flummaxed and dont really know what I have so said keep on with the asprin and dont look back! I also have two horses who have helped a great deal I believe, so hang in there fellow sufferers there are and can be positive outcomes.
Recent threads lead me to post my experience with MS and that it does not always have to be so. It took my neuro 3 yrs to diagnose me and my symptons were bad, I had scans the lot. It became so bad that they offered me a drug only for the few about 30000 worldwide and people have died using it, so I said no. I researched other deseases with similar symptoms, cut along story short I was tested positive for Hughes Syndrome which the neuro's dont talk too much about, I was put on low dose aspirin by my spec at St Thomas hosp in London and have not had any symptoms since 2yrs. The docs are a little flummaxed and dont really know what I have so said keep on with the asprin and dont look back! I also have two horses who have helped a great deal I believe, so hang in there fellow sufferers there are and can be positive outcomes.
